This topic has information for parents regarding cystic fibrosis.
CysticFibrosis.com is a social health community, founded in 1996 at the dawn of the Internet and the rise of the e-patient — the electronic or empowered patient. They are a source of information, hope, and encouragement for patients and families affected by CF.
Cystic Fibrosis Foundation
National foundation - www.cff.org
Washington Chapter (serves Alaska) - http://www.cff.org/washington/
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Cystic Fibrosis Research, Inc.
Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.